Precious little Lydia had a rough night and has been having a not
so easy day. We're pretty sure that her throat is just inflamed from being
extubated and that the crying fits she's having with her hoarse little
voice are not helping to relieve the irritation. She's taking in enough
oxygen and her air exchange within her lungs sounds really good. It's
just a sad little sound she makes when she breaths and an especially sad
sound she makes when she's crying...that is if you can hear her while
she's closed up in her giraffe bed. She was given Ativan last night to
help her rest and it helped a good bit. It helped me rest too knowing
that she would be able to sleep. When she woke up she still sounded bad
but not as bad as before her rest. She has gotten 2 breathing
treatments and may be getting another one soon. they seem to be helping
a little bit too. If she has to have too many more they'll put her on
some steroids to take care of the inflammation. Dr Goodwin-Sampson also
brought in a CPAP machine just in case...she said it was to intimidate
Lydia into breathing right so she wouldn't have to be put on it....so
far it's working!
Penny is doing relatively well. She's
still having de-sat episodes but the doctor says it's not at an
abnormal rate. She also just finished up her second blood transfusion
which should make her feel much better. Being that she can't make more
blood (for a few more weeks anyway) to replace what's being taken to
test blood sugars....she was starting to look a little pale. She looks
better in a nice rosy pink! Penelope also has been following a pattern
since she started on her insulin of having blood sugar drops at the
second hour after her shot. Today the endocrinologist suggested that we
skip a dose and see how she handles it. This could be the first step
in weaning her from the insulin. This would be a HUGE answered prayer.
And we know we have had no shortage of those!
On a
non-medical note, Jonathan and I had a realization moment as we sat and
ate our lunch today. Our lunch was not the not-disgusting cafeteria
food. It wasn't even peanut butter and jelly. It was delicious salads
from Panera brought by some precious friends. To my left there sat a
bag with the extra food brought by them and an adorable bucket full of
all kinds of goodies. Movies, gum, candy, popcorn, lotion, stamps,
dental floss, nail polish...anything we could want! To my right were
two beautiful gift bags full of adorable clothes and precious bath
towels for the girls from another friend. The entire table was covered
in very tangible representations of the love and support that has been
poured out on us. Of course there are many other ways that people have
been loving and supporting, namely through prayer. But seeing this
table covered up, was a visual reminder of all of the prayers and
thoughts and website checks and calls and texts and facebook messages,
and meals, and offered meals, and many other ways that God is showing us
His love through the hands and feet of other people. It's a very
humbling thing. It's something I hope I never forget. Thank you all
for being willing to come alongside us on this crazy journey. Thank you
for caring for us and our daughters. Thank you most of all for your
prayers that are being answered everyday with every breath that Lydia
and Penelope take. Even if it does irritate their throats!
No comments:
Post a Comment