We had a relatively uneventful night here. Penny had a few clamp down
episodes but fewer than yesterday. She sure does love to express her
discontent when she is messed with!
We spoke with the
pulmonoligist this morning as well as were here for rounds so we feel
pretty up to date on what's going on. She will be getting a bronchoscope
done tomorrow to check for any airway abnormalities (medical folks
please correct me if I'm wrong). Then on Thursday she is going to the
cath lab to have a definitive test run to check for pulmonary
hypertension. It's an invasive procedure so we are a little cautious
about it but everyone calls it the "gold standard" for pulmonary
hypertension. Once we have a decision one way or another we can treat
it and nice forward. Lord willing.
For now they're
starting her on more regular bolus feeds rather than continuous and also
will start inching down her vent settings so that she's not on more
support than she needs. The best news of the day is that the nurse is
going to let me hold her! So I'm going to stop typing and go do that.
I'm sure you understand.
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