Thursday, March 15, 2012

Post from Ellie Rose's mom unedited

This is a post from my friend Andrea who has the pleasure of being the mother of Ellie Rose.  The newest member of our "we'll show YOU doctor's report!"club.

 

Whew...joy in it's purest form!


I never, never imagined walking out of this place so happy I could skip...but today, I did!


Ellie- Asleep and completely unaware of the miracle she is, especially today, when we were given amazing news!

Praise God for relief...in the deep areas of my soul!!

Today we had our meeting with Dr. Boop, the neurosurgeon, for a post-birth follow-up regarding Ellie's potential neuro needs. I started getting anxious yesterday because I was fearing that he would see something that we weren't aware of. From what we have observed with her she seemed perfectly healthy and typical (well, more than typical...amazing...but anyhow).

Dr. Boop met with us, asked us how the birth went and how she had been doing, evaluated her and then said the most priceless words I believe I have heard since we received her diagnosis at 18-wks of pregnancy. "This doesn't feel like a Dandy Walker head to me." (as he was evaluating her). I don't think I have ever been so absolutely thrilled to hear something in my life!! It was like the stress, pressure, worry, weight just rolled off my shoulders and fell upon the floor right then and there. It was like God just placed some salve instantly to the hurting places of my heart...the places that hadn't been able to heal for fear of the next unexpected twist and turn. Of course, if you know me, you know how I get when I am excited- goofy. And so I respond, "Boy, I sure want to high five you for those words!" as I am talking to this very calm, cool, collected neurosurgeon and I am talking about high-fiving him. It was hilarious as he just smiled back at me with humor in his eyes. I am sure that isn't the response he gets from folks all the time. I told him too that I would never forget this day or the words that he spoke.

The coolest part is that I feel like he, the doctor, was God's messenger today- telling our hearts to calm and be at rest for the first time in what has almost been a year of constant worry and fear about the unknowns in the future. We have dealt with many doctors along the path of this last year and this doctor has been the highlight of all of them. Even if we hadn't received positive news today, I would view him the same and be thankful that he would be caring for our baby. You know there are just moments in life when you know, clearly, that God is using someone directly in your life to speak to the most inner parts of your heart. And so, in that simple sentence I have found some unbelievable peace and absolute joy!

Even when I went to the OB for my post-baby appointment today she cried over how amazing Ellie is and the miracle God performed in her lil' life already. Hearing from her how difficult of a pregnancy we had gave me a bit of perspective, for if she sees so many pregnant sisters all the time and thought we had a rough road then it must have been a bit bumpy.

I feel like we are looking at Ellie like she is a newborn again, with an absolute awe of what God has done in her 6-wk old life to defeat the odds and show the world the healing of His hands. Share our story with someone and let them see how God has rocked it and flexed His muscles big time!

We do have future follow-up appointments regarding Ellie's heart and neuro, so please continue to pray that all stays positively consistent with what have learned today. We'll continue to update the blog, I guess it will begin to serve as just a plain ol' family blog...I like that...I can handle some boring!!

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