6-15 unedited

So we had a good night all around. Jonathan and I tore ourselves away from Penny to spend some sweet time with Lydia. I'm sure that will always be a painful balancing act but its necessary. Lydia is starting to learn how to roll over along with laughing and smiling and eating rice cereal with a spoon! So it was a fun time to spend with her.

Penny had a nice quiet night with not as many clamping episodes or tachypnea (which she was struggling with a little yesterday). Her intubation tube had moved a little so once they fixed that she settled down. She also got a blood transfusion yesterday which seems to have perked her up a bit too. Today she will be having a brochoscopy, which is just a little camera run down her intubation tube to check for anything that might be causing trouble. The pulmonoligist mentioned that she may be having trouble with her diaphragm being flat so this will answer that question. Because she has also been having to get ivs regularly and they only last a few days, it looks like she will be getting a PIC (peripherally inserted catheter) line while she is sedated for the bronch. I take that back. She's getting it now because she just blew her last iv. Hopefully this will greatly reduce the number if sticks and pricks she gets so this is good. Please pray that both of these routine procedures go routinely.

Although there are many differences between the PICU and the NICU that are difficult to adjust to, there a few we really like. Mostly that miss Penelope can have anything and everything she wants from home. I just brought in a huge bag of clothes and blankets to decorate the bed and she even has her mobile from home! Last night he was moved to another room to make space for newly admitted kids and in all of the hubbub she started looking around. Jonathan was here with her and said that she found her mobile and just stared and stared at it. I'm so grateful that that little thing was a comfort to her. In such a seemingly helpless situation it's nice to be able to provide something for her. I guess we should take a lesson from her. When everything is changing and nothing makes sense, we can just look up an find comfort in what we know. In her case it's panda bears but you get the point.

Specific prayer
-smooth procedures today
-Healing for her lungs
-definitive answers from these tests
-stabilization of her blood gases
-focus on gratitude for all of the unbelievable blessings we are receiving

Penny and her mobile

Lydia and her new Teddy bear buddy