Penny and I had a nice little slumber party last night. A pretty
nasty looking storm came through but we were safe and sound here in the
PICU. She has been started on the medicine for her pulmonary
hypertension (it's viagra. Go ahead and giggle) and it seems to be
helping with her spasms. She also is on pretty low vent settings to the
point that she can either do it on her own or she can't. The next step
is to put the vent settings on "cpap" and see how she does. Basically
that gives her support but let's her do most of it herself. The first
time they did it she dropped her sats a little so they put her back on
vent settings. She will get trials like this every so often until she
does well then she can be extubated. Her sedatives are also being weaned
so we are having more and more sweet awake time.
I'll
be going home soon to spend some time with Lydia and maybe get some
rest. I'll try to post a picture of her soon. For now here's Sweet Pea
and her sleepy eyes
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