It's been a tense couple of days as we went back and forth with the decision about Penelope's respiratory future. We have decided that in order for her to get back to participating in life and for her to be able to develop as she should, she will be getting a tracheostomy. This will allow her to come off of the sedation she's been on for almost 3 weeks now and also will get that terribly uncomfortable tube out of her throat and my favorite part is that it will also get rid of the tape on her face!!! After she heals up from her surgery (it's scheduled for Wednesday) then she should be able to get right back to regular unsedated life...just with a fancy new necklace. With all of the physical/occupational therapy we'll have her doing she may wish she could be sedated again! I've joked that she's missed so much developmentally that just as soon as she's alert again I'm going to be right in her face singing the ABCs! I'm sure with all her spunk she'll be catching up quickly.
Our friend Jonathan Frizzell did really well in his surgery and for now the repairs are working. Please keep praying for his family though as the doctors are talking more about the family's plan for when it stops working rather than if. That's hard for a mother to hear.
Our buddy Lynnlee also could still use your prayers. They are starting to look at the possibility of a trach for her too. There are a few more things that they are trying before they go that direction but please pray for their family as they face these tough decisions too.
Specific Prayer (just to recap)
- Penelope's preparation for trach surgery
- Jonathan F and his family
- Lynnlee and her family
- Our plans for how to handle things when I have to go back to work in one short month
Lydia and Eliza on a walk. Both were very excited.
"It's so exhausting being so adorable" -Penny
"uh...guys? Don't look now but I think there's a lamb on my head?" -Penny
Penny and Mommy during snuggle time today
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